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ALS Bibliography -
Easily printable version
Requires Adobe Acrobat.      

Manuscripts and Book Chapters

1. Anderson FA Jr, Miller RG. ALS CARE: A resource for measuring and improving ALS outcomes. Neurology. 1996;47(Suppl 2):113S -116S
2. Brooks BR. Risk factors in the early diagnosis of ALS: North American epidemiological studies. ALS and Other Motor Neuron Disorders. 2000;1:(Suppl 1) S19-S26
3. Bradley WG, Anderson FA Jr, Bromberg MB, Gutmann L, Harati Y, Ross MA, Miller RG. Current management of ALS: Comparison of the ALS CARE Database and the AAN Practice Parameter. Neurology. 2001;57:500-504
4. Bromberg MB, Anderson FA Jr, Davidson MC, Miller RG, on behalf of the ALS CARE Study GroupBromberg MB. Assessing health status quality of life in ALS: Comparison of the SIP/ALS-19 with the ALS Functional Rating Scale and the Short Form-12 Health SurveyTM. ALS and Other Motor Neuron Disorders. 2001;2:31-37
5. Jackson CE, Lovitt S, Gowda N, Anderson FA, Miller RG & The ALS Care Study Group: Factors correlated with NPPV use in ALS. Amyotrophic Lateral Sclerosis. 2006; 7:80-85.
6. Lechtzin N, Wiener C, Clawson L, Diette G, Davidson MC, Anderson FA Jr, and the ALS CARE Study Group. Use of Non-Invasive Ventilation in Patients with Amyotrophic Lateral Sclerosis. ALS and Other Motor Neuron Disorders. 2003.
7. Mandler RN, Clawson L, Miller RG, and the ALS CARE Study Group. The ALS Patient Care Database: Insights into end-of-life palliative care in Amyotropic Lateral Sclerosis. and Other Motor Neuron Disorders. 2001; 2:203-208.
8. Miller RG, Anderson FA Jr, Bradley WG, Bromberg MB, Brooks BR, Mitsumoto H, Munsat T, Ringel SP, and the ALS CARE Study Group. The ALS Patient Care Database: Goals, design and early results. Neurology. 2000;54(1):53-57
9. Miller RG. Anderson FA Jr. Establishing benchmarks of ALS management. In: Mitsumoto H, Munsat T (eds) Amyotrophic Lateral Sclerosis: A guide for patients and families. Demos Publishing. New York, 1999
10. Mitsumoto H, Davidson MC, Moore D, Gowda NJ, Brandis M, Ringel SP, Rosenfeld J, Shefner J, Strong M, Sufit R, Anderson FA Jr and the ALS CARE study group. Percutaneous endoscopic Gastrostomy (PEG) in patients with ALS and bulbar dysfunction. ALS and Other Motor Neuron Disorders. 2003; 4; 177- 185.
11. Bradley WG, Anderson FA Jr, Gowda NJ, Miller RG and the ALS CARE Study Group. Changes in the management of ALS since the publication of AAN Practice Parameter 1999. ALS and Other Motor Neuron Disorders. 2004; 5; 1-4.
Abstracts and Presentations
12. Anderson FA Jr, Miller RG, and the ALS CARE Advisory Board. The value of databases in ALS: The ALS Patient Care Database experience. Proceedings of the 12th International Symposium on ALS/MND. Oakland, November 18-20, 2001;2 (Suppl 2); abstract:C39;27
13. Boynton-De Sepulveda L, Sufit RL, and the ALS CARE Study Group. Identification of psychological well-being and depression in an ALS population and those factors influencing its presentation. Proceedings of the 12th International Symposium on ALS/MND. Oakland, November 18-20, 2001;2 (Suppl 2); abstractC70;48
14. Brooks BR, Vann JM, Waclawik AJ, Anderson FA Jr and Gowda NJ and the ALS CARE Study Group. Onset of Amyotrophic Lateral Sclerosis [ALS] is delayed, but of course is not altered, in ALS Patients with Pre-Existing Bone and Joint disease: Neuroepidemiological insights from the ALS Care database. Poster Presentation, Neurology, Honolulu, April 1-6, 2003.
15. Brooks BR, Anderson FA Jr and Gowda NJ and the ALS CARE Study Group. Amyotrophic Lateral Sclerosis [ALS] outcomes in US military veterans compared with non-veterans: Neuroepidemiological insights from the ALS Patient Care Database. Proceedings of the 14th International Symposium on ALS/MND. Milan, November 16-18, 2003: 4(Suppl 1); abstractC55;114.
16. Brooks BR, Harati Y, Gowda NJ, Anderson FA Jr, Bradley WG, Mitsumoto H, Miller RG and ALS CARE Study Group United States. Increased Therapeutic Interventions in US Military Veterans with Amyotrophic Lateral Sclerosis (ALS) following Release of American Academy of Neurology (AAN) ALS Practice Parameter (PP): Neuroepidemiological Insights from ALS CARE Database Proceedings of the 15th International Symposium on ALS/MND. Philadelphia, Dec 2-4, 2004: SESSION 8B : 0140
17. Bradley WG, Anderson FA Jr, Bromberg MB, Gutmann L, Harati Y, Ross MA, Miller RG. Discrepancies between recent management practices in ALS and AAN evidence-based practice parameters, as revealed by the ALS Patient Care Database. Proceedings of the 11th International Symposium on ALS/MND. Arhaus, December 4-6, 2000
18. Bradley WG, Anderson FA Jr, Gowda NJ, Bromberg MB, Gutmann L, Harati Y, Ross MA, Miller RG, and the ALS CARE Study Group. Tracking adherence to the ALS practice parameter. Platform presentation, Neurology, Denver, April 13-20, 2002.
19. Bradley WG, Anderson FA Jr, Gowda NJ and the ALS CARE Study Group. Improvement in the management of ALS since 1999 publication of AAN Practice Parameter: Evidence from ALS Patient Care Database. Proceedings of the 14th International Symposium on ALS/MND. Milan, November 16-18, 2003: 4(Suppl 1); abstractC21;20.
20. Cashman NR, Cudkowicz ME, Davidson MC, Pioro EP, Rosenfeld J, and the ALS CARE Study Group. Gender effects on duration and onset age of Amyotrophic Lateral Sclerosis. Proceedings of the12th International Symposium on ALS/MND. Oakland, November 18-20, 2001;2 (Suppl 2); abstractC60;41.
21. Cashman NR, White C, Anderson FA Jr, and the ALS CARE Study Group. Gender and presentation age in the ALS Patient Care Database. Neurology. 2000;52(Suppl 2):A166
22. Cashman NR, White C, Anderson FA Jr, and the ALS CARE Study Group. Comorbid conditions in patients with Amyotrophic Lateral Sclerosis (ALS) in the ALS Patient Care Database. Proceedings of the 10th International Symposium on ALS/MND. Vancouver, November 8-10, 1999
23. Cashman NR, White C, Anderson FA Jr, and the ALS CARE Study Group. Later presentation age in women in the ALS Patient Care Database. Proceedings of the 10th International Symposium on ALS/MND. Vancouver, November 8-10, 2000
24. Coker L, Donofrio P, Ross MA, Caress J, Hege A, Ashburn C, Walker T, Gowda N and the ALS CARE Study Group. Gender-related differences in spousal caregiving for patients with ALS. Proceedings of the 13th International Symposium on ALS/MND. Melbourne, November 15-17, 2002; Platform Presentation.
25. Cudkowicz M, Graves M, Miller RG, Boyton de Sepulveda L, Lessard D, Davidson MC, Anderson FA Jr, and the ALS CARE Study Group. Effect of Riluzole use on survival, pulmonary and functional status in a cohort of ALS patients. Proceedings of the 11th International Symposium on ALS/MND. Arhaus, December 4-6, 2000
26. Lechtzin N. Respiratory interventions for ALS: Predictors of use and outcomes. Annual Meeting of the American Thoracic Society. May 2001
27. Lechtzin N, Moore D, Miller RG, Mitsumoto H, Brooks BR, Anderson FA Jr, Gowda NJ and the ALS CARE study group. Noninvasive Positive Pressure Ventilation Use and Outcomes in Patients with Amyotrophic Lateral Sclerosis. Proceedings of the 15th International Symposium on ALS/MND. Philadelphia, Dec 2-4, 2004: SESSION 10B.
28. Mandler RN, Clawson L, Miller RG, and the ALS CARE Study Group. The ALS Patient Care Database: Insights into end-of-life palliative care in Amyotropic Lateral Sclerosis. Ann Neurol. 1999;46(3):506
29. Mandler RN, Clawson L, and the ALS CARE Study Group. The ALS Patient Care Database: Caregivers’ perspective on effectiveness of palliative care. Proceedings of the 9th International Symposium on ALS/MND. Munich, November 16-18, 1998
30. Miller RG, Anderson FA Jr, Bradley WG, Brooks BR, Mitsumoto H, Munsat TL, Ringel, SP, and the ALS CARE Study Group. The ALS Patient Care Database: A resource for measuring and improving ALS outcomes. Neurology. 1998;50(Suppl 4):A245
31. Miller RG, Bromberg MB, Anderson FA Jr, and the ALS CARE Study Group. Assessing the quality of life in ALS: Comparison of the Short Form-12 Health Survey with the ALS Functional Rating Scale, forced vital capacity and ALS Quality of Life Index. Proceedings of the 8th International Symposium on ALS/MND. Glasgow, November 2-4, 1997
32. Miller, RG. The ALS Patient Care Database: Outcomes assessment in practice. Proceedings of the 9th International Symposium on ALS/MND. Munich, November 16-18, 1998
33. Miller, RG, Mitsumoto H, Bradley WG, Gowda NJ, and Anderson FA Jr and the ALS CARE Study Group. Temporal trends in the care of ALS in North America: 1997-2004. Proceedings of the 15th International Symposium on ALS/MND. Philadelphia, Dec 2-4, 2004. Session 8B:
34. Mitsumoto H, Bradley WG. Treatment of ALS: Practice guidelines and outcomes assessment. Neurology. 1999;52(Suppl 1):31-33
35. Mitsumoto H, Davidson MC, Moore D, Brandis M, Del Bene M, Cashman NR, Ringel SP, Rosenfeld J, Shefner J, Strong M, Anderson FA Jr. PEG utilization in participants of the ALS Patient Care Database. Neurology. 2001;56(Suppl 3): A201
36. Mitsumoto H, Anderson FA Jr, Albert S, Gowda N, Miller R, Rosenfeld J, Strong M, Bromberg M and the ALS CARE study group. Improving end of life care in ALS: Findings from the ALS CARE database. Proceedings of the 15th International Symposium on ALS/MND. Philadelphia, Dec 2-4, 2004: SESSION 8B
37. Rosenfeld J. Multidisciplinary versus solo practitioner care of the ALS patient. Proceedings of the 11th International Symposium on ALS/MND. Arhaus, December 4-6, 2000
38. Ross MA, Bradley WG, Heinman-Patterson T, Lyon M, Singleton C, Lessard D. The ALS caregiver – Insights from the ALS Patient Care Database. Proceedings of the 10th International Symposium on ALS/MND. Vancouver, November 8-10, 1999
39. Ross MA, Bryan W, Hoagland R, Brooks BR, Harati Y, Parry G, Miller RG, and the ALS CARE Study Group. Application of the El Escorial ALS diagnostic criteria in clinical practice. Neurology. 1999;52(6) Suppl 2:A163
40. Ross MA, Bradley WG, Heinman-Patterson T, Lyon M, Gowda NJ, Anderson FA, Dabbous OH, Moore DH and the ALS CARE Study Group. The ALS caregiver – New Insights from the ALS Patient Care Database. Proceedings of the 14th International Symposium on ALS/MND. Milan, November 16-18, 2003: 4(Suppl 1); abstractC22;114.
41. Sufit RL, Miller RG, Mitsumoto H, Parry G, Ringel SP, Lessard D, and the ALS CARE Study Group. Prevalence and treatment of sialorrhea in Amyotrophic Lateral Sclerosis patients as assessed by the ALS Patient Care Database. Ann Neurol. 1999;46(3):506


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